Support Group Surveys and Results


Where We Live

The Where We Live survey is an important ongoing effort to count PRP individuals and their countries – including territories, provinces, or states. In addition to general interest, these statistics provide important evidence to the medical community for how widespread this condition is.

Cumulatively, Where We Live now includes several hundred individuals from more than 25 countries. Everyone who is officially diagnosed with PRP (or their caregivers) is invited to add their individual information.

You can view the results, and add your own information to the Where We Live survey.

Thank you for your interest and contribution to this effort.

Note: Please do not add duplicate entries. If you have previously responded, you are already counted.


March 2006 Survey

March 2006 survey results


July/August 2006 Survey

July/August 2006 survey results